GROUND-BREAKING RESULTS - NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE: Immunotherapy delivers a “ceasefire” with the stem cell transplant approach to suppress the immune system and eliminate the immune cells causing the progression of the disease. MORE
Scleroderma (skleer-oh-DUR-muh) comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Scleroderma is a chronic autoimmune disorder which means the body's tissues are attacked by its own immune system. In the simplest of terms, Scleroderma is an overproduction of collagen that can result in thickening or tightening of skin and scarring of internal organs.
5.30.2012 - A team of researchers have identified a peptide that can block fibrosis of the skin and lungs, according to a report published today. “Lung fibrosis currently is the number one cause of death in patients with scleroderma,” said the report’s senior author Carol A. Feghali-Bostwick, Ph.D.
The Relief Foundation sponsored and hosted the release of "Beneath the Surface" on June 19, 2014 at the Plaza Frontenac Cinema. Narrated by Bob Saget, the documentary includes Kelly Ellison, founder of The Relief Foundation, and other scleroderma patients from around the world. Christy McCaffrey, creater of the film, was present to share her personal story and journey to raise awareness and save lives.
A super huge THANK YOU to those that came out, made a donation, desired to come but could not, volunteered or helped in any way to make the screening of Project Scleroderma: Beneath the Surface a HUGE success. I truly appreciate the love and support. So many amazing things happened besides the obvious; like a woman with scleroderma from Greensboro, NC traveling to California and being in St Louis at the same time as the screening. Thanks to those that traveled from Indiana, KC, parts of Illinois, and Cape Girardeau. My heart is full of joy! Kelly J. Ellison
Beneath the Surface Movie Trailer CLICK IMAGE BELOW
ANNUAL RELIEF FOUNDATION BENEFIT FOR PATIENTS WITH SCLERODERMA
AUGUST 18, 2014
A recent photo of my first Grandchild and he is smiling!
That is because he is so happy that I am here with him today. My Doctor said there was a very real chance I may not have survived the most recent flare-ups of the diffuse scleroderma. I have no insurance and no resources to obtain the medications I needed to take (plus 6 trips to the hospital, two ambulance rides, medications and
Doctor visits). THEN I FOUND YOU and THE RELIEF FOUNDATION. Your financial help SAVED MY LIFE! Because you were able to send funds to my pharmacy I was able to quickly get the best medication available for me and it helped me survive to be here for my Grandson Wyatt. Angels do exisit, but sometimes even angels need some help to do their work when they are helping others. Maybe this note will be useful in letting others know of your good work and result in some donations to the foundation. I hope The Relief Foundation has a very successful fund raising year and I want to express my graitude for the chance they gave me to keep fighting this disease.
Sincerely, Leona Nemac (& Wyatt)
My Family sends Prayers, Gratitude and Best wishes to you and all those involved with the Foundation...
“Most diseases processes have a turn on and turn off, and if we can shut off the turn on, the body itself will come in and begin some repair,” Neubig said....and they’ve narrowed down scleroderma’s. READ MORE
Groundbreaking scleroderma research being done at Michigan State University
Christy McCaffrey, Creator, Project Scleroderma: Beneath the Surface; Kelly J. Ellison, Founder, The Relief Foundation; Victoria Babu, Media Personality and Event MC (l to r)