GROUND-BREAKING RESULTS - NORTHWESTERN UNIVERSITY FEINBERG SCHOOL OF MEDICINE: Immunotherapy delivers a “ceasefire” with the stem cell transplant approach to suppress the immune system and eliminate the immune cells causing the progression of the disease. MORE
Scleroderma (skleer-oh-DUR-muh) comes from two Greek words: “sclero” meaning hard, and “derma” meaning skin. Scleroderma is a chronic autoimmune disorder which means the body's tissues are attacked by its own immune system. In the simplest of terms, Scleroderma is an overproduction of collagen that can result in thickening or tightening of skin and scarring of internal organs.
5.30.2012 - A team of researchers have identified a peptide that can block fibrosis of the skin and lungs, according to a report published today. “Lung fibrosis currently is the number one cause of death in patients with scleroderma,” said the report’s senior author Carol A. Feghali-Bostwick, Ph.D.
Three years ago my mom was diagnosed with Scleroderma, a very serious autoimmune disease that affects the skin and internal organs. God used many tools and people to help her.
My goal is to complete the CD by the end of this year to be released in time for Christmas. We want to dedicate the album to Scleroderma patients. Some of the money from the Album will go to The Relief Foundation, an organization that helps people who are diagnosed with Scleroderma and their families financially. I am asking for your support to help me and my mom to complete this project. It means a lot to me to use my gift of singing to record. It means a lot to me and Mom for her to play on this CD with her Scleroderma hands. We want to share our gifts and be a blessing. It is our way of giving back.
Thank you so much in advance for your contributions. Every dollar amount will be greatly appreciated.
Gratefully, Hannah (and her mom, Lugenia)
ANNUAL RELIEF FOUNDATION BENEFIT FOR PATIENTS WITH SCLERODERMA
PAR for RELIEF
AUGUST 18, 2014
A recent photo of my first Grandchild and he is smiling!
That is because he is so happy that I am here with him today. My Doctor said there was a very real chance I may not have survived the most recent flare-ups of the diffuse scleroderma. I have no insurance and no resources to obtain the medications I needed to take (plus 6 trips to the hospital, two ambulance rides, medications and
Doctor visits). THEN I FOUND YOU and THE RELIEF FOUNDATION. Your financial help SAVED MY LIFE! Because you were able to send funds to my pharmacy I was able to quickly get the best medication available for me and it helped me survive to be here for my Grandson Wyatt. Angels do exisit, but sometimes even angels need some help to do their work when they are helping others. Maybe this note will be useful in letting others know of your good work and result in some donations to the foundation. I hope The Relief Foundation has a very successful fund raising year and I want to express my graitude for the chance they gave me to keep fighting this disease.
Sincerely, Leona Nemac (& Wyatt)
My Family sends Prayers, Gratitude and Best wishes to you and all those involved with the Foundation...
“Most diseases processes have a turn on and turn off, and if we can shut off the turn on, the body itself will come in and begin some repair,” Neubig said....and they’ve narrowed down scleroderma’s. READ MORE
Groundbreaking scleroderma research being done at Michigan State University
I am Hannah Donaldson and I love to sing. I love Jesus and I love to sing about Jesus. I want my voice to glorify God and bless others. I have been singing publicly since I was 3 years old. I wrote my first song between 3 and 4 years old entitled "I Love God." I recorded my first amateur CD when I was 9.
Christy McCaffrey, Creator, Project Scleroderma: Beneath the Surface; Kelly J. Ellison, Founder, The Relief Foundation; Victoria Babu, Media Personality and Event MC (l to r)